December 17, 2018
Undiagnosed Rare Disease Patients Cost NHS England $4.3 Billion, and then Some
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December 10, 2018
Actelion Pharmaceuticals Agrees to Pay $360 Million to Settle Kickback Allegations
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December 6, 2018
The 100,000 Genomes Project Reaches Its Goal
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November 28, 2018
Senator Gillibrand Calls for $1 Billion in Emergency Funding to Combat AFM
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November 20, 2018
Teens Want a Say about Their Genetic Information
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October 31, 2018
China Alliance for Rare Disease Holds Inaugural Meeting
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September 10, 2018
Patient System to Help Diagnose People in European with Rare Diseases
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September 10, 2018
ACMG Call for National Policy to Control Drug Costs
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September 5, 2018
Price Control Efforts in Canada Threaten to Thwart Access to New Rare Disease…
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July 16, 2018
New Zealand Agency Takes Steps to Improve Access to Rare Disease Therapies
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June 27, 2018
CMS Says Drugs Approved through FDA Accelerated Approval Must Be Covered
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