October 3, 2022
Rare Genetic Disease PTEN Gets an IDC Code
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July 19, 2022
Global Genes Awards 2022 Health Equity Grants to Rare Disease Groups Addressing Challenges Affecting Underserved Communities
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June 6, 2022
A $25 Million Gift Establishes Center of Excellence for Williams Syndrome at Penn Medicine
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May 18, 2022
Managing Your Mental Health: Rare Disease Affects Beyond the Body
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March 9, 2022
Angelman Syndrome Foundation and Dup15q Alliance Launch New Medical Network
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March 3, 2022
Perth Children’s Hospital Creating New Rare Care Centre
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March 1, 2022
Levine Children’s Hospital Receives $1 Million Gift for Rare Disease Center
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February 4, 2022
Genetic Testing: When You Don’t Get a Diagnosis
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December 10, 2021
Forma Launches Formabridge and $1M Grants Program to Support Transition from Pediatric to Adult Care in Sickle Cell Disease
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November 5, 2021
NORD Names 31 Rare Disease Centers of Excellence
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October 22, 2021
Medical Cost for Rare Diseases on Par with Cancer, Heart Failure
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July 22, 2021
NHS England Unveils New Innovative Medicines Fund to Fast-Track Promising New Drugs
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