Community Events

#RAREis One: A Global Webinar in Honor of Rare Disease Day

February 29, 2024

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#RAREis One is a new program from Amgen, which will focus on elevating the faces, voices and unique experiences of those living with or caring for someone with a rare disease. The panel will focus on the importance of global storytelling, the shared experiences of those in the community as well as the challenges they’ve encountered and overcome. Panel participants will share their experiences, advice and insights as rare disease caregivers and advocates working closely in the rare disease community.