Legg-Calvé-Perthes disease
Synonyms: Aseptic necrosis of the capital femoral epiphysis | Osteochondrosis of the capital femoral epiphysis | Perthes disease
A rare disorder characterized by uni- or bilateral avascular necrosis (AVN) of the femoral head in children.
Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview.
Reference: Access aggregated data from Orphanet at Orphadata.
Orphadata: Free access data from Orphanet. © INSERM 1999. Available on http://www.orphadata.org. Data version April 2024
Newly diagnosed with
Legg-Calvé-Perthes disease?
Our RARE Concierge Services Guides are available to assist you by providing information, resources and connections as you navigate your rare disease journey.
Advocacy Organizations
Perthes Kids Foundation
Perthes Kids Foundation's mission is to make an immediate, positive impact, on the lives of children diagnosed with Legg-Calvé-Perthes disease. We are the leading organization dedicated to a community of parents, kids, doctors, family members and adults with Perthes, from all over the world, working together to take action, advocate, educate, and support each other, as we fight this rare disease.
Syndromes Without A Name (SWAN) Australia
Provide information, support and advocacy to families caring for a child with an undiagnosed or rare genetic condition.
Clinical Trials
For a list of clinical trials in this disease area, please click here.