Acquired hemophilia B

Get in touch with RARE Concierge.

Contact RARE Concierge

Synonyms: AHB | Acquired F9 deficiency | Acquired factor IX deficiency

Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview. Reference: Access aggregated data from Orphanet at Orphadata. Orphadata: Free access data from Orphanet. © INSERM 1999. Available on http://www.orphadata.org. Data version October 2024

Newly diagnosed with
Acquired hemophilia B?

Our RARE Concierge Services Guides are available to assist you by providing information, resources and connections as you navigate your rare disease journey.

Get Concierge Help

Advocacy Organizations

Hemophilia Council of California

The Hemophilia Council of California has a vision for open access to quality innovative care and choice of treatment for all people with bleeding disorders. We accomplish this by advancing the quality of life for bleeding with bleeding disorders through advocacy, education and outreach in collaboration with our founding member organizations.

Hemophilia Foundation of Northern California

The Hemophilia Foundation of Northern California (HFNC) serves the needs of people impacted by bleeding disorders through enhancing quality of life by providing support, education, outreach, advocacy and research through our affiliated national foundations.

Hemophilia Welfare Foundation (Kenya)

o assist persons with hemophilia and related blood disorders through direct services and aid, and through programs of education and advocacy. To encourage, promote, and support scientific research toward improved treatment, medical care, and cures of hemophilia and related bleeding disorders and their complications. To educate the public regarding bleeding disorders and the problems thereof, and

Hemostasis and Thrombosis Center of Nevada

The Hemostasis & Thrombosis Center of Nevada (HTCNV) is Nevada's only federally designated hemophilia treatment center (HTC). We provide care for benign inherited blood disorders specifically bleeding disorders, thrombotic disorders and sickle cell disease. Our mission is to provide access to compassion evidence based quality care to all patients in Nevada regardless of their ability to pay.

National Center of Hematology and Blood Transfusion

Treatment of patients with blood diseases,scientific-research works

Youth And Women for Opportunities Uganda-YWOU

Our mission supports Rare, orphan and undiagnosed diseases diagnosis, care and treatment, education, awareness and empowering health care professionals and patients care takers of rare, orphan and undiagnosed diseases arena in Uganda, build capacity and bridge lack of clinical knowledge and experience and provide search/quest for diagnostic laboratories, I advocate for changes in laws, practices

Don't see your organization here. Let us know here.

Clinical Trials

For a list of clinical trials in this disease area, please click here.