Frontonasal arteriovenous malformation
Frontonasal arteriovenous malformation is a rare vascular anomaly characterized by abnormal communication between arteries and veins bypassing the capillary bed located in the frontonasal area. It may present with intermittent nasal bleeding blurred vision pustule formation and/or disfigurement. Overlying skin may be of normal appearance or may manifest a red pulsatile mass with local rise of temperature. Other features may include pain ulceration excessive growth and/or congestive heart failure.
Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview.
Orphadata: Free access data from Orphanet. © INSERM 1999. Available on http: //www.orphadata.org. Data version September 2023.
Newly diagnosed with
Frontonasal arteriovenous malformation?
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Project FAVA is a 501(c)(3) non-profit patient advocacy group that promotes awareness of fibro-adipose vascular anomalies, educates patients, their families, and the global community, and provides helpful resources to those with FAVA. Project FAVA also advances research to move the needle towards more effective and less invasive treatment options for FAVA patients.
Collaborative Research Advocacy for Vascular Anomalies Network (CaRAVAN)
As the research-based umbrella organization for all vascular anomalies, we are on a mission to develop a unified network of patients and their families, advocates, researchers, and clinicians who influence research from initial concept and design to patient care delivery
For a list of clinical trials in this disease area, please click here.