Frontotemporal dementia with motor neuron disease

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Synonyms: FTD-ALS | FTD-MND | Frontotemporal dementia with amyotrophic lateral sclerosis

Frontotemporal dementia with motor neuron disease (FTD-MND) is a type of frontotemporal lobar degeneration characterized by the insidious onset (between the ages of 38-78 years) of dementia-associated psychiatric symptoms (e.g. personality changes uninhibited behavior irritability aggressiveness) memory difficulties global intellectual impairment emotional disorders and transcortical motor aphasia that eventually leads to mutism in addition to the manifestations of motor neuron disease such as neurogenic muscular wasting (similar to what is seen in amyotrophic lateral sclerosis; see this term). The disease is progressive with death occurring 2-5 years after onset.

Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview. Reference: Access aggregated data from Orphanet at Orphadata. Orphadata: Free access data from Orphanet. © INSERM 1999. Available on http://www.orphadata.org. Data version May 2024

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Advocacy Organizations

Cache DNA

At Cache, we are on a mission to store the biomolecules of today in order to unlock the possibilities of tomorrow. Our vision is to create a scalable, sustainable, and standardized platform for reliable storage and access of biomolecules by combining chemistry, biology, automation, and computational tools to support patient advocacy groups worldwide and better connect samples to insights.

Ducks For Dementia

Ducks For Dementia, founded on the profound compassion and vision of a young boy named David, aims to bring solace and understanding to individuals with dementia and their families. Our mission is rooted in the distribution of toy ducks as symbols of comfort, which serve not only as therapeutic aids but also as beacons of joy and companionship for those navigating the complexities of dementia.

Genetic Support Network of Victoria

The Genetic Support Network of Victoria is an organisation that supports people living with genetic, undiagnosed and rare conditions and those who support them including community and families, patient support organisations, health professionals and industry. Our vision is our community flourishing and living their best lives.

patriot for growth and development initiative

Patriots for Growth and Development Initiatives (PGDI), is a non-governmental and civil society organization that is dedicated to promoting sustainable development and poverty reduction in Nigeria and beyond. Founded in 2017 and registered with the Corporate Affairs Commission (CAC) in Nigeria, PGDI is committed to contributing to the attainment of the United Nations Millennium Development Goals

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Clinical Trials

For a list of clinical trials in this disease area, please click here.