O’Sullivan-McLeod syndrome

Get in touch with RARE Concierge.

Contact RARE Concierge

O’Sullivan-McLeod syndrome

A rare acquired motor neuron disease characterized by an initial unilateral weakness in the intrinsic hand muscles that eventually spreads to the opposite limb (with an asymmetrical distribution) and that has a very slow progression of muscular atrophy over a 20 year period.

Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview.

Reference: Access aggregated data from Orphanet at Orphadata.

Orphadata: Free access data from Orphanet. © INSERM 1999. Available on http://www.orphadata.org. Data version March 2024

Newly diagnosed with
O’Sullivan-McLeod syndrome?

Our RARE Concierge Services Guides are available to assist you by providing information, resources and connections as you navigate your rare disease journey.

Get Concierge Help

Advocacy Organizations

patriot for growth and development initiative

Patriots for Growth and Development Initiatives (PGDI), is dedicated to creating a sustainable and equitable world where everyone has access to basic amenities, quality education, decent healthcare, and good livelihoods. Our mission is to promote sustainable development, democracy and good governance, anti-corruption, and accountability, health with a specific focus on rare diseases.

Clinical Trials

For a list of clinical trials in this disease area, please click here.