Pituitary carcinoma

Get in touch with RARE Concierge.

Contact RARE Concierge

Pituitary carcinoma

A rare pituitary tumor characterized by the presence of a pituitary adenoma that has metastasized either within the central nervous system or to distant sites. The vast majority of pituitary carcinomas are hormonally active most frequently with ACTH or prolactin production. The most common clinical symptoms are diabetes insipidus optic nerve dysfunction anterior pituitary dysfunction palsy of cranial nerves III IV or VI and headaches although patients may also be asymptomatic. The tumors behave aggressively and prognosis is poor.

Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview.

Reference: Access aggregated data from Orphanet at Orphadata.

Orphadata: Free access data from Orphanet. © INSERM 1999. Available on http://www.orphadata.org. Data version May 2024

Newly diagnosed with
Pituitary carcinoma?

Our RARE Concierge Services Guides are available to assist you by providing information, resources and connections as you navigate your rare disease journey.

Get Concierge Help

Advocacy Organizations

My Faulty Gene

My Faulty Gene is a nonprofit organization which provides information and assistance to any individual whose family medical history suggests genetic testing might be helpful in identifying an increased risk of disease due to a genetic mutation. We believe that everyone in need of genetic testing should have access to it.

My Little Sunshine Foundation

My Little Sunshine is a non-profit foundation dedicated to educating people about the importance of fertility preservation and making fertility resources accessible to all.


Educate and provide resources to POC with Rare Cancers

Clinical Trials

For a list of clinical trials in this disease area, please click here.