A rare malignant germ cell tumor characterized by predominant composition of embryoid bodies consisting of a central core of embryonal carcinoma cells an amnion-like cavity and a yolk sac tumor component. The tumor usually occurs as the dominant component of a mixed germ cell tumor with teratoma being the most common associated element. It may manifest as an abdominal mass or with abdominal pain menstrual irregularities or precocious puberty in women while men typically present with testicular enlargement. Serum alpha-fetoprotein and/or beta-human chorionic gonadotropin can be elevated.
Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview. Reference: Access aggregated data from Orphanet at Orphadata. Orphadata: Free access data from Orphanet. © INSERM 1999. Available on http://www.orphadata.org. Data version September 2024
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Polyembryoma?
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Advocacy Organizations
Help Hope Live
Help Hope Live supports community-based fundraising for people with unmet medical expenses and related costs due to cell and organ transplants or catastrophic injuries and illnesses. These efforts play a critical role in helping clients access the care and equipment they need to heal, live, and thrive. Unlock a powerful and safe way to raise funds for medical needs with Help Hope Live. They provide one-on-one fundraising guidance, a customizable Campaign Page, bill pay support, and additional benefits based on their 501(c)(3) nonprofit status.
My Faulty Gene
My Faulty Gene is a nonprofit organization which provides information and assistance to any individual whose family medical history suggests genetic testing might be helpful in identifying an increased risk of disease due to a genetic mutation. We believe that everyone in need of genetic testing should have access to it.
My Little Sunshine Foundation
My Little Sunshine is a non-profit foundation dedicated to educating people about the importance of fertility preservation and making fertility resources accessible to all.
Pediatric Brain Tumor Foundation
The Pediatric Brain Tumor Foundation is committed to leading the way toward a future without childhood cancer. Because of supporters’ generosity, advocacy, and encouragement, thousands of families turn to us each year and find the resources and community support they need on their cancer journey.
SALUS
Educate and provide resources to POC with Rare Cancers
The JDS Foundation
A foundation that specializes in financial support to high risk and terminal cancer patients to assist in treatment, travel expenses, end of life wishes, outreach, and public awareness.
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Clinical Trials
For a list of clinical trials in this disease area, please click here.