Rosette-forming glioneuronal tumor

Get in touch with RARE Concierge.

Contact RARE Concierge

Synonyms: RGNT

Rosette-forming glioneuronal tumor is a rare mixed neuronal-glial tumor characterized by the presence of uniform rosette- (or pseudorosette-) forming neurocytes with an astrocytic component together creating a biphasic pattern. It can present with signs of raised intracranial pressure (headache vomiting papilledema) hydrocephalus seizures ataxia and visual disturbances or can be diagnosed incidentally in asymptomatic patients. The tumor usually arises in the midline involving the fourth ventricle or the cerebellum.

Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview. Reference: Access aggregated data from Orphanet at Orphadata. Orphadata: Free access data from Orphanet. © INSERM 1999. Available on http://www.orphadata.org. Data version July 2024

Newly diagnosed with
Rosette-forming glioneuronal tumor?

Our RARE Concierge Services Guides are available to assist you by providing information, resources and connections as you navigate your rare disease journey.

Get Concierge Help

Advocacy Organizations

Help Hope Live

Help Hope Live supports community-based fundraising for people with unmet medical expenses and related costs due to cell and organ transplants or catastrophic injuries and illnesses. These efforts play a critical role in helping clients access the care and equipment they need to heal, live, and thrive. Unlock a powerful and safe way to raise funds for medical needs with Help Hope Live. They provide one-on-one fundraising guidance, a customizable Campaign Page, bill pay support, and additional benefits based on their 501(c)(3) nonprofit status.

My Faulty Gene

My Faulty Gene is a nonprofit organization which provides information and assistance to any individual whose family medical history suggests genetic testing might be helpful in identifying an increased risk of disease due to a genetic mutation. We believe that everyone in need of genetic testing should have access to it.

My Little Sunshine Foundation

My Little Sunshine is a non-profit foundation dedicated to educating people about the importance of fertility preservation and making fertility resources accessible to all.

Project CASK

VISION Project CASK believes in a world free of the life limitations and debilitating effects of CASK gene disorders. ​MISSION To accelerate breakthroughs in research to develop treatments and a cure for CASK gene disorders. ​VALUES Collaboration. Transparency. Urgency.

SALUS

Educate and provide resources to POC with Rare Cancers

Don't see your organization here. Let us know here.

Clinical Trials

For a list of clinical trials in this disease area, please click here.