Tolosa-Hunt syndrome

Get in touch with RARE Concierge.

Contact RARE Concierge

Synonyms: Painful ophthalmoplegia

Tolosa-Hunt syndrome is an ophthalmoplegic syndrome affecting all age groups characterized by acute attacks (lasting a few days to a few weeks) of periorbital pain ipsilateral ocular motor nerve palsies ptosis disordered eye movements and blurred vision usually caused by a non-specific inflammatory process in the cavernous sinus and superior orbital fissure. It has an unpredicatable course with spontaneous remission occurring in some and recurrence of attacks in others.

Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview. Reference: Access aggregated data from Orphanet at Orphadata. Orphadata: Free access data from Orphanet. © INSERM 1999. Available on Data version May 2024

Newly diagnosed with
Tolosa-Hunt syndrome?

Our RARE Concierge Services Guides are available to assist you by providing information, resources and connections as you navigate your rare disease journey.

Get Concierge Help

Advocacy Organizations

Don't see your organization here. Let us know here.

Clinical Trials

For a list of clinical trials in this disease area, please click here.