Vascular Ehlers-Danlos syndrome

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Vascular Ehlers-Danlos syndrome

Synonyms: Arterial-ecchymotic EDS | EDS IV | Ehlers-Danlos syndrome type 4 | Sack-Barabas syndrome | Vascular EDS | vEDS

A rare genetic connective tissue disorder typically characterized by the association of unexpected organ fragility (arterial/bowel/gravid uterine rupture) with inconstant physical features as thin translucent skin easy bruising and acrogeric traits.

Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview.

Reference: Access aggregated data from Orphanet at Orphadata.

Orphadata: Free access data from Orphanet. © INSERM 1999. Available on Data version December 2023

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Vascular Ehlers-Danlos syndrome?

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Advocacy Organizations

Zebra CARE Initiative

To bring Charity, Access, Research, and Education (CARE) through and beyond the rare disease, disabled, and medically complex communities for a more inclusive and accessible medical system.

Clinical Trials

For a list of clinical trials in this disease area, please click here.