Elevate Natural History Study Planning and Reach

September 22, 2020

Patient organizations play a critical role in leveraging their communities’ data to drive innovation and access to therapies. Learn how you can develop the capacity at your own organization for improved data collection and governance, explore methodologies for data collection and registry models, and start accelerating your research immediately.

In this discussion you will learn:
– How to plan for your natural history study
– Tips for approaching data governance conversations with researchers and clinicians
– Strategies to expand your natural history study reach to get more researcher interest

Meet your featured speakers for this session: