Thank you for attending (in person or virtually)
2022 RARE Patient Advocacy Summit
Rare Life. Bonded Together

Each year, Global Genes convenes one of the world’s largest gatherings of rare disease patients, caregivers, advocates, healthcare professionals, researchers, partners, and allies at the RARE Patient Advocacy Summit.

This year, we were excited to celebrate together again, and have virtual attendees join from their homes as well. We welcomed the opportunities to connect, learn, have fun, and celebrate the Champions of Hope!

Summit sessions provided attendees with insights about the latest in rare disease innovations, best practices for advocating on an individual and organizational level, and actionable strategies to take home.

Watch what those who attended the Summit this year had to say about their experiences:


View Session Recordings    View Agenda

*Must have attended in person or virtually to view recording of sessions. Sessions will be available for 90 days after the Summit.


Save the Date for the
2023 RARE Patient Advocacy Summit

From: 09/19/2023 - To: 09/20/2023

08:00 AM - 05:00 PM UTC-12:00

Sheraton Harbor Island, 1380 Harbor Island Dr, San Diego, CA 92101

Champion Sponsor

Title Sponsor

Presenting Sponsors

Gold Sponsors

Industry Session Sponsors

Patient Advocate Stipend Sponsors

Champions of Hope Sponsors