Free, personalized service for patients, caregivers, and healthcare providers
The rare disease community faces many challenges and obstacles when it comes to mental health and emotional well-being; we are here to help.
Grant opportunities for the rare disease community
Share your story as a patient, advocate, caregiver or supporter to be featured in our community stories
Learn, search, and explore the media and resource hub
These RARE facts show the impact of rare disease
An opportunity for RARE patients and medical students to connect and learn
Search for a particular rare disease, and resources connected to the condition
Diseases that are in the process of being officially classified.
Tips and resources for telling your rare disease story on video
Learning family health history can help find out if a disease runs in a family
Search RARE Daily, podcasts, videos, blogs, stories, toolkits, and reports
Your involvement in driving understanding, discovery, and treatments for rare disease
Browse the latest news, articles, and blog posts from Global Genes.
A collaborative and competitive environment to use patient-provided data to solve unknowns
Learn and participate in upcoming clinical trials
Promote collaboration across rare genetic ocular disorders that advances research leading to vision-enhancing therapies
Browse upcoming Global Genes hosted events and register
Bringing together RARE Advocacy Summit and RARE Health Equity Forum into one week
Gathers rare disease stakeholders to identify ways in which we can better serve marginalized populations
An unparalleled opportunity to network the rare disease community for future collaboration
Equipping advocates with knowledge, skills, and connections to advance therapy development
An annual observance to raise awareness for 400 million people affected by rare disease globally
Designed for patients and advocates who have started funding rare disease research
Explore events hosted by communities, individuals, and other organizations outside of Global Genes
Learn about our commitment to health equity
Get a glimpse of the people behind Global Genes
a members only, global community of non-profit organizations and support group
a partnership committed to improving the lives of people with rare diseases
Learn how organizations can support Global Genes financially
Join the Global Genes team
Global Genes’ latest press releases
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Explore all Global Genes and Community upcoming and past events.
