Get one-to-one time with experts on topics such as data collection, research strategy, therapy development, and engaging with the FDA.
Expert Office Hours
Tuesday, April 30, 1pm & 4:30pm *not all experts are available for all office hours
Get answers to your questions by scheduling a one-to-one session with one of our experts on topics such as data collection, research strategy, therapy development, and engaging with the FDA. Appointments will open in March for registered attendees.
Confirmed attendees may reserve a spot in March.
Lara Bloom President & CEO of The Ehlers-Danlos Society
Betty Cabrera, MPH Director of Research Engagement and Operations, Gene Therapy Center at UCSD
Jennifer Farmer CEO, Friedreich’s Ataxia Research Alliance
Ben Forred, MBA Director, Translational Research & The CoRDS Registry Sanford Health
Maureen McArthur Hart Director, Patient Advocacy, Policy, and External Engagement Creyon Bio
Dave Jacoby, M.D., Ph.D. Fellow in Clinical Science and Vice President, Head of Discovery Medicine BioMarin
Juan Carlos Lopez, Ph.D. Managing Director, RTW Charitable Foundation
Casey McPherson Founder, To Cure A Rose Foundation
Katherine Maynard Partner, PWR
Liz Ottinger, Ph.D. Senior Program Manager Division Division of Preclinical Innovation, NCATS
Debbie Requesens Director, JumpStart Program Orphan Disease Center, University of Pennsylvania
Charlene Son Rigby CEO, Global Genes
Tania Simoncelli, M.S. VP, Science in Society Chan Zuckerburg Initiative
Zohreh Talebizadeh Senior Director of RARE-X Research Program, Global Genes
Ramona Walls, Ph.D. Executive Director of Data Science Critical Path Institute (C-Path)