Event

Expert Office Hours

Get one-to-one time with experts on topics such as data collection, research strategy, therapy development, and engaging with the FDA.

Expert Office Hours

Tuesday, April 30, 1pm & 4:30pm
*not all experts are available for all office hours

Get answers to your questions by scheduling a one-to-one session with one of our experts on topics such as data collection, research strategy, therapy development, and engaging with the FDA. Appointments will open in March for registered attendees.

Confirmed attendees may reserve a spot in March.

Lara Bloom
President & CEO of The Ehlers-Danlos Society

Betty Cabrera, MPH
Director of Research Engagement and Operations,
Gene Therapy Center at UCSD

Jennifer Farmer
CEO, Friedreich’s Ataxia Research Alliance

Ben Forred, MBA
Director, Translational Research & The CoRDS Registry
Sanford Health

Maureen McArthur Hart
Director, Patient Advocacy, Policy, and External Engagement
Creyon Bio

Dave Jacoby, M.D., Ph.D.
Fellow in Clinical Science and Vice President, Head of Discovery Medicine
BioMarin

Juan Carlos Lopez, Ph.D.
Managing Director, RTW Charitable Foundation

Casey McPherson
Founder, To Cure A Rose Foundation

Katherine Maynard
Partner, PWR

Liz Ottinger, Ph.D.
Senior Program Manager Division
Division of Preclinical Innovation, NCATS

Debbie Requesens
Director, JumpStart Program
Orphan Disease Center, University of Pennsylvania

Charlene Son-Rigby, Global Genes CEO

Charlene Son Rigby
CEO, Global Genes

Tania Simoncelli, M.S.
VP, Science in Society
Chan Zuckerburg Initiative

Zohreh Talebizadeh
Senior Director of RARE-X Research Program, Global Genes

Ramona Walls, Ph.D.
Executive Director of Data Science
Critical Path Institute (C-Path)