Program Coordinator

Reports to:
Senior Program Manager




Community engagement, outreach, capacity building and education are at the center of the Support and Education team’s work at Global Genes. This work is highly visible and valued in the rare disease community. The Program Coordinator position is critical in ensuring the smooth and effective delivery of the Support and Education programs at Global Genes. This role requires a confident, compassionate individual who is comfortable working with various rare disease stakeholders including rare disease patient advocacy groups leaders, patients, caregivers, families and more to build rapport and establish trust. Strong attention to detail, excellent communication and organizational skills, analytical and multi-project coordination skills are a must as well as passion for the work in the rare disease space.

This role is a great opportunity for someone looking to learn more about the rare disease community and be involved in a leading patient advocacy organization dedicated to eliminating the burdens of rare disease for patients and families worldwide.


  • Build and maintain key relationships with advocacy partners
  • Ensure development and implementation of outstanding programs
  • Maintain systems, data collection and processes as related to program management

The Program Coordinator will act as an essential member of the Global Genes’ Support and Education team to carry out the duties required of the position which include but are not limited to:

  • Assist in managing the Global Advocacy Alliance program timeline, objectives and key results.
  • Aid in the recruitment and engagement efforts for the Global Advocacy Alliance.
  • Provide ongoing support and education to Global Advocacy Alliance members through social media,
    email and other technologies
  • Plan and execute ongoing in-person and virtual education and engagement opportunities for the Global Advocacy Alliance and members of the rare disease community.
  • Support the development of internal and external reports and publications
  • Communicate proactively, accurately and impeccably both verbally and in writing with internal teams
    and partners
  • Actively contribute to an environment of teamwork, cooperation, performance excellence and personal success
  • Work cross-functionally across teams to provide updates and coordination throughout Global Genes programs and initiatives where applicable.
  • Performs other duties and functions as assigned.


  • Bachelor’s degree from an accredited college or university is ideal
  • Minimum of 2 – 4 years proven success in program coordination or comparable experience
  • Knowledge of issues facing rare disease patients and the broader community a plus
  • Non-profit advocacy, healthcare or life sciences experience a plus
  • Exceptional presentation, documentation, customer-service, problem solving and communication skills
  • Exceptional professional style with a strong customer service approach
  • Strong passion for the rare disease community required
  • Self-starter with a proven commitment to excellence; results-oriented
  • Role model in organizational skills, attention to detail and gaining accountability
  • Comfortable working on a fast-paced remote team
  • Bilingual or proficiency in multiple languages is ideal
  • Proficient in Zoom, Microsoft Suite, MS Word, Excel, PowerPoint, Basecamp, and database management required (Salesforce preferred)
  • Ability to travel for meetings and conferences, as needed.

Salary range: $50,000 to $70,000

Comprehensive benefits including health, dental, vision and ancillary insurance offerings, 401(k), paid time off, cell phone allowance, etc.

Please submit resumes and cover letters to [email protected]. We appreciate all interest however, we will only respond to those individuals with whom we have a further interest.

Global Genes is an Equal Opportunity Employer committed to diversity in the workplace.

The statements herein are intended to describe the general nature and level of work being performed by employees and are not to be construed as an exhaustive list of responsibilities, duties, and skills required of personnel so classified. Furthermore, they do not establish a contract for employment and are subject to change at the discretion of the employer.

Last Revised Date: November 2023