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2024 RARE Research Readiness Fellowship

Fellowship applications will open March 4, and accepted until 12:00 PM (noon) EST on Wednesday, April 3, 2024. Fellowship applicants will be notified of award status the week of April 29.

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2024 RARE Research Readiness Fellowship

As an exclusive funding opportunity for rare patient organizations that are a part of the Global Advocacy Alliance, this fellowship provides patient advocacy leaders with the opportunity to make a tangible difference in the lives of rare disease patients and caregivers across the globe.

The RARE Research Readiness Fellowship will provide awardees with high-touch support and mentorship around research readiness and strategic planning. The program will include a gap analysis of ongoing and completed research and assistance in developing a prioritization strategy. This will help guide awardees in making impactful decisions regarding their grant awards and community engagement activities.

NOTE: This is not a traditional funding opportunity through Global Genes. Organizations selected for this fellowship will receive up to $2,500 (USD) in funding to apply to one of the above mentioned outcomes. Organizations will also receive six months of high touch support and mentorship from Global Genes around research readiness and strategic planning. 

Fellowship applications will open March 4, and will be accepted until 12:00 PM (noon) EST on Wednesday, April 3, 2024. Fellowship applicants will be notified of award status the week of April 29 and awardees publicly announced soon thereafter. 

If you have any questions, please contact us at [email protected].

About the RARE Research Readiness Fellowship

The RARE Research Readiness Fellowship will fund this collaborative work and provide financial support of up to $2,500 (USD) for awardees apply to continued work in one of the following areas:

    • Development of an RFP (request for proposals) for a specific grant opportunity

    • Narrowing their short-term research focus to a project most aligned with the gaps identified in their research readiness

    • Expanding their scientific advisory board to include expertise needed to undertake new research paths

    • Engaging their patient community to begin or expand standardized data collection or to participate in a natural history study

    • As an exclusive funding opportunity for rare patient organizations that are a part of the Global Advocacy Alliance, this fellowship provides patient advocacy leaders with the opportunity to make a tangible difference in the lives of rare disease patients and caregivers across the globe.

About the RARE Impact Grant Program

Over the past decade, Global Genes’ RARE Impact Grant Program has provided a funding and capacity-building opportunity for rare patient organizations that are a part of the Global Advocacy Alliance.

These funds support and steward capacity-building initiatives such as starting a registry, convening patients and caregivers, collaborating with researchers, and developing educational tools and resources to expand their reach into underserved and/or geographically disparate patient populations.

Global Advocacy Alliance (GAA) membership is a requirement to receive grant funding. You will not be able to submit this application if your organization is not a GAA member.


Thank you to the 2024 RARE Meet-Up Impact Grant Sponsors

Gold Sponsor

travere logo

Silver Sponsor

Bronze Sponsor

Partner Sponsor

Biocryst

Interested in supporting next year’s RARE Meet-Ups Grants?