“I’m Determined To Make Sure He Sees a Cure,” Says Father of Boy with MD

August 10, 2015

A Haywards Heath father is cycling 1,000 miles for a charity to help his son, who has a muscular dystrophy.

Rob Laid, along with a team of 32 national riders, will cycle the length of Britain to fund research and raise awareness about Duchenne muscular dystrophy for his son Alex.

By riding from Lands End to John O’Groats the team is aiming to raise over £70,000 for Action Duchenne, the national charity dedicated to improving the lives of those with this fatal condition.

Duchenne mainly affects boys and causes severe muscle wasting. Most boys with the condition are in wheelchairs by the age of 12, with the condition becoming life threatening during their teens. Alex, five, is losing muscle strength every day. It is imperative treatments are developed as soon as possible to halt his deterioration and offer hope to his and other families affected by this currently incurable condition.

Rob said: “Alex was diagnosed with Duchenne muscular dystrophy in June last year and I am determined to make sure he sees a cure. I have been a lazy cyclist for years but am now really looking forward to the event. The irony of me trying to get fit whilst Alex’s muscles waste is never lost on me, and helps keep me focused with the training.

Read more on this story at the source.

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