Community Events

National Foundation for Ectodermal Dysplasias Family Conference

July 14, 2023 - July 16, 2023

Register now

The National Foundation for Ectodermal Dysplasias (NFED) Family Conference is for everyone affected by ectodermal dysplasias and their loved ones. At the conference, you will connect with families who share an ectodermal dysplasia diagnosis and learn from medical experts about topics specific to you (dermatology, dental care, genetics, etc.). While adults attend sessions, children will make friends and enjoy age-appropriate activities at Kays’ Kids Camp and Teens Program. Join us for three days of connection, laughter and learning in Colorado. When you attend the NFED Family Conference, you will leave knowing that you are not alone.

If you can’t make it to Colorado this year, we are offering a virtual option as well!