August 29, 2015
Jill Ziegler Talks How To Go From Enthusiast to Advocate
August 20, 2015
“They Told Me To Go Home and Get My Affairs In Order,” Says Pulmonary Hypertension Patient
March 18, 2015
2015 Tribute to Champions of Hope Nominations Now Open!
December 28, 2013
RARE Share: How Have Your View Changed Since Caring for Someone with a Rare Disorder?
August 30, 2013
BIO Patient and Health Advocacy Summit: Registration Now Open
June 10, 2013
Rare Responds: Parent Advocate Advice
June 7, 2013
Genetic Disease Foundation to Receive Award at NY Mets Game July 19th
June 5, 2013
Advocacy Group Helped Fund New FDA-Approved Orphan Drug
May 21, 2013
National Eosinophil Awareness Week, May 19-25
May 12, 2013
How Being Her Own Advocate Saved my Mother’s Life
March 19, 2012
Rare Disease Language included in House draft PDUFA Bill
March 13, 2012
The Grassroots Movement Behind Ultra and Fast: Join the Movement!