August 29, 2015
Jill Ziegler Talks How To Go From Enthusiast to Advocate
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August 20, 2015
“They Told Me To Go Home and Get My Affairs In Order,” Says Pulmonary Hypertension Patient
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March 18, 2015
2015 Tribute to Champions of Hope Nominations Now Open!
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December 28, 2013
RARE Share: How Have Your View Changed Since Caring for Someone with a Rare Disorder?
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August 30, 2013
BIO Patient and Health Advocacy Summit: Registration Now Open
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June 10, 2013
Rare Responds: Parent Advocate Advice
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June 7, 2013
Genetic Disease Foundation to Receive Award at NY Mets Game July 19th
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June 5, 2013
Advocacy Group Helped Fund New FDA-Approved Orphan Drug
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May 21, 2013
National Eosinophil Awareness Week, May 19-25
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May 12, 2013
How Being Her Own Advocate Saved my Mother’s Life
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March 19, 2012
Rare Disease Language included in House draft PDUFA Bill
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March 13, 2012
The Grassroots Movement Behind Ultra and Fast: Join the Movement!
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