April 26, 2022
Christina Hartman: Rare Mom, Advocate, Professional
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April 25, 2022
Caroline Loewy: Rare Mom, Advocate, Non-Profit Extraordinaire
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April 24, 2022
John Crowley: Rare Dad, Advocate, Researcher, Entrepreneur
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April 24, 2022
Irie Long: Rare Partner & Advocate
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April 23, 2022
Effie Parks: Rare Mom, Podcaster for Once Upon a Gene
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April 22, 2022
Daniel DeFabio: Rare Dad, Filmmaker, Advocate
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November 10, 2020
RARE Patient Advocacy: Forging Connections for Change
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October 5, 2020
It’s Never Too Late to Find your Community
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June 17, 2020
Highlights from 2020 RARE Drug Development Symposium
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August 29, 2015
Jill Ziegler Talks How To Go From Enthusiast to Advocate
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August 20, 2015
“They Told Me To Go Home and Get My Affairs In Order,” Says Pulmonary Hypertension Patient
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March 18, 2015
2015 Tribute to Champions of Hope Nominations Now Open!
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