Tag: ALD

A total of 3 posts are filed under ALD
Help the Aidan Jack Seeger Foundation to Expand ALD Newborn Screening
The Aidan Jack Seeger Foundation is excited to announce a new initiative to expand newborn screening for ALD nationally. As you know,… Continue Reading
Pediatric Blood and Marrow Transplant Program and University of Minnesota Masonic Children’s Hospital
  The Pediatric Blood and Marrow Transplant Program at University of Minnesota Masonic Children’s Hospital has unsurpassed world-wide… Continue Reading
Save The Boys: Sign the Petition for Adrenoleukodystrophy (ALD)
August and September bring about peak birth rates in the United States. Each newborn is screened for a variety of rare, potentially fatal,… Continue Reading
be-a-guest-blogger

Follow us on Twitter

Upcoming Events

Sep 14

RARE Patient Advocacy Summit

September 14 @ 8:00 am - 5:30 pm
Sep 14

RARE Partnering 2017

September 14 @ 8:00 am - 5:00 pm
Sep 15

RARE Patient Advocacy Summit

September 15 @ 8:00 am - 4:30 pm
Sep 15

RARE Champion of Hope Awards

September 15 @ 5:00 pm - 9:30 pm
Sep 16

Corporate Alliance

September 16 @ 9:00 am - 12:00 pm
Sep 16

RARE Day of Beauty

September 16 @ 12:00 pm - 5:00 pm
Sep 16

Tribute to Champions of Hope

September 16 @ 5:30 pm - 10:30 pm