May 6, 2016
Childhood Cancer Action Days Taking Place in Washington, DC. on May 16-17 2016
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February 9, 2016
Baby with Coat’s Disease Given New Eye
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August 15, 2015
Why Is Your Rare Disease So Hard to Diagnose? Meet The Lucky and the Unlucky
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May 30, 2015
“Waiting to Get a Colonoscopy Was My Biggest Mistake” My Familial Adenomatous Polyposis Story
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April 2, 2015
Eli “Wear ‘Em Down” Waehrer Faces Alveolar Soft Part Sarcoma
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March 17, 2015
When Fate Throws You TWO Rare Diseases
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April 9, 2014
Want to Prevent Genetic Disease? Study the Healthy Right Now: Stephen Friend at TED2014
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January 17, 2014
“The Fight to Live” to Premiere on Cable This Month
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December 18, 2013
Late Rare Cancer Patient’s Song Lives on in Largest “Clouds” Choir
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May 2, 2013
Rebecca’s Battle with Rhabdomyosarcoma
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January 15, 2013
Sarcoma Foundation of America to Hold its 2013 Annual Patient Educational Conference
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December 17, 2012
Teen with Rare Form of Cancer Writes Song to Say Goodbye
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