May 6, 2015
Teen’s Unique Web-Design Fundraising Strategy Aids Companies and Nonprofits
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February 16, 2014
Zumbathon® Charity Event for Hunter Syndrome on March 1st in Texas
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April 10, 2012
Rickshaw Run 2012: Cool Runnings for Sanfilippo Syndrome
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March 22, 2012
Team Cool Runnings Racing for Sanfilippo Syndrome in a RickShaw Run
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July 4, 2011
The Flammable Heart Exhibition
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February 8, 2011
7,000 Bracelets for Hope™ Campaign Raises Awareness For Over 7000 Rare Diseases
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January 26, 2011
GLOBAL GENES PROJECT ANNOUNCES “WEAR THAT YOU CARE™” DENIM AWARENESS CAMPAIGN FOR RARE DISEASE DAY 2011
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September 28, 2010
NIH Coalition of Patient Advocacy Groups Convene – Global Genes Represented
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September 22, 2010
Charleston|Orwig Goes Blue For Global Genes Project supporting rare disease!
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June 29, 2010
R.A.R.E. Project's, Jonathan Jacoby to present at FDA Hearing on Rare Disease
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September 8, 2009
Save the Date! Conferences of interest to parent advocates!
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