May 12, 2022
At a Crossroad for Innovation in Rare Disease
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May 5, 2022
Getting Your Community Ready for Clinical Trials
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April 24, 2022
John Crowley: Rare Dad, Advocate, Researcher, Entrepreneur
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March 28, 2017
New Clinical Trial Announced for Patients with Glucose Transporter Type-1 Deficiency Syndrome
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September 15, 2016
Introducing 2016 Speaker Kent Thoelke: Leveraging Big Data to Grow Clinical Trials
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July 29, 2016
RARECast: How to Improve Patient Access to Experimental Drugs
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July 14, 2016
Another Big Step Forward For New Cystic Fibrosis Drug By Nivalis Therapeutics
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June 10, 2016
RARECast: Bringing Patient-Centricity to Clinical Trials
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June 7, 2016
Room For More Participants: Vtesse Opens Niemann-Pick Type C1 Disease Study
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April 6, 2016
Presenting New Global Genes Toolkit: Drug Development Series
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October 13, 2015
Presenting CTTI Recommendations: Effective Engagement with Patient Groups Around Clinical Trials Webinar
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July 8, 2014
Alexion Pharmaceuticals Takes on New Clinical Trials for Myasthenia Gravis and Neuromyelitis Optica
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