March 7, 2012
First-of-it’s-kind iPad Communication Speaking App For Those With Challenging Medical Conditions – Say Hi! ACC
Read More
June 29, 2010
Children's Rare Disease Network Partners With Medpedia.com To Create Rarespace
Read More
June 29, 2010
R.A.R.E. Project's, Jonathan Jacoby to present at FDA Hearing on Rare Disease
Read More
May 4, 2010
MarbleRoad Comes to the CRDN Blog
Read More
February 21, 2010
Blog for Rare! Bloggers Around the World Unite to Support World Rare Disease Day 2010 (Feb. 28) #blog4rare
Read More
December 23, 2009
New York Times Reports on Cystic Fibrosis Advancements
Read More
September 8, 2009
Save the Date! Conferences of interest to parent advocates!
Read More
September 3, 2009
Nominate Your Rock Star of Science!
Read More
July 13, 2009
Searching for a Cure For Duchenne – Patient Perspective Podcast #1
Read More
March 6, 2009
Survey says: Misdiagnosis of rare diseases is common
Read More
X