Tag: Congress

A total of 20 posts are filed under Congress
The Time to Fund More Childhood Cancer Research is NOW
Childrenscause.org is sending a plea out to all patients and families to participate in a petition. “We need your help. Congress is now… Continue Reading
Celebrate Your Victory – the 21st Century Cures Act Passes the House!
Rare disease patient advocates have reason to celebrate today as the House of Representatives passed H.R. 6/the 21st Century Cures by a vote… Continue Reading
Join RDLA’s In-District Lobby Days, Meet Congress In Your Community!
We hope you join us for our 2nd annual In-District Lobby Days! In August, Congress will return home to their districts to connect with… Continue Reading
International Primary Immunodeficiencies Congress (IPIC 2015)
IPOPI is hosting the second edition of the International Primary Immunodeficiencies Congress (IPIC 2015) in the beautiful city of Budapest,… Continue Reading
Pulmonary Hypertension Patients Sending Video Selfies to Congress!
Patients are PHighting back and going straight to congress to do so! Individuals impacted by pulmonary hypertension (PH), a rare,… Continue Reading
US Congress Hears About NGLY1
On Tuesday, July 22, 2014, at 3:00 p.m. in 2322 Rayburn House Office Building, the Subcommittee on Health held a hearing entitled “21st… Continue Reading
Rare Disease Congressional Caucus Briefing Action Alert
On Wednesday, November 14, RDLA, National Health Council, and Shire, in coordination with Rare Disease Caucus… Continue Reading