Tag: Congress

A total of 19 posts are filed under Congress
Celebrate Your Victory – the 21st Century Cures Act Passes the House!
Rare disease patient advocates have reason to celebrate today as the House of Representatives passed H.R. 6/the 21st Century Cures by a vote… Continue Reading
Join RDLA’s In-District Lobby Days, Meet Congress In Your Community!
We hope you join us for our 2nd annual In-District Lobby Days! In August, Congress will return home to their districts to connect with… Continue Reading
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International Primary Immunodeficiencies Congress (IPIC 2015)
IPOPI is hosting the second edition of the International Primary Immunodeficiencies Congress (IPIC 2015) in the beautiful city of Budapest,… Continue Reading
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Pulmonary Hypertension Patients Sending Video Selfies to Congress!
Patients are PHighting back and going straight to congress to do so! Individuals impacted by pulmonary hypertension (PH), a rare,… Continue Reading
US Congress Hears About NGLY1
On Tuesday, July 22, 2014, at 3:00 p.m. in 2322 Rayburn House Office Building, the Subcommittee on Health held a hearing entitled “21st… Continue Reading
Rare Disease Congressional Caucus Briefing, November 14, 2012 with RDLA, National Health Council and Shire
Rare Disease Congressional Caucus Briefing Action Alert
On Wednesday, November 14, RDLA, National Health Council, and Shire, in coordination with Rare Disease Caucus… Continue Reading
Please contact your Members of Congress and urge them to protect funding for the Food & Drug Administration & National Institutes of Health!
We Need Congress to Reach an Agreement to Protect NIH & FDA from Funding Cuts
The election is over, and the status-quo remains. Republicans remain in control of the House of Representatives, while Democrats retain… Continue Reading