February 20, 2019
Global Commission Releases Plan for Shortening Rare Disease Diagnostic Odyssey
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December 8, 2015
Seeking $31k to Reduce Diagnostic Delay in Dysautonomia Patients
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April 10, 2014
Girl, Three, Diagnosed With Coat’s Disease After Facebook Photo Shared
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February 20, 2014
Accurate Diagnosis of Rare Diseases Remains Difficult Despite Strong Physician Interest
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February 13, 2014
Newly Diagnosed with Williams Syndrome
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January 22, 2014
Helping Patient Understand: Williams Syndrome and Diagnosis
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January 3, 2014
Jasey’s Journey: Ultra-Rare PACS1 Genetic Disease
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April 4, 2012
Raising Awareness in Spain for Idiopathic Pulmonary Haemosiderosis
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March 20, 2012
Reflex Sympathetic Dystrophy (RSD): Diagnosis Difficult
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