5.9.2016 In just less than a month, I am going to my absolute favorite place on earth- Disney World. I realize most of the people who agree with me… Continue Reading
4.16.2016 By Tiffany Early Marriage comes with many laments. “Why can’t you put the toilet seat down?” “The trash is seriously overflowing!”… Continue Reading
4.14.2016 I’ve yet to meet many other Ehler’s-Danlos Syndrome patients who can recall the exact date the syndrome changed their lives forever, but… Continue Reading
6.7.2015 If you don’t know much about Ehlers-Danlos syndrome (EDS), or perhaps you’ve never even heard of it, then you’re not the only one. In… Continue Reading
2.25.2015 I have had random back and neck pain since I was a young teen. After more then a decade of hearing “you’re too young for back pain,”… Continue Reading
5.17.2014 I’m a 37 year old woman of four children. Eight years ago I started to notice my body was in pain a lot. Slowly, year by year, that pain… Continue Reading
Global Genes Blog Editor Weighs in for HuffPo: How Do You Deal With Relatives Who Don’t Understand Your Chronic Illness?
1.2.2014 I don’t generally go into the long and sordid story of how me and the majority of my family get on with my chronic illness. But what… Continue Reading