Tag: Ehlers-Danlos Syndrome

A total of 18 posts are filed under Ehlers-Danlos Syndrome
Often in Pain? Double-Jointed? You Could Have Ehlers-Danlos Syndrome
If you don’t know much about Ehlers-Danlos syndrome (EDS), or perhaps you’ve never even heard of it, then you’re not the only one. In… Continue Reading
“I May Be Rare, But I Am Still Me” Mom with EDS Demands Diagnosis
I have had random back and neck pain since I was a young teen. After more then a decade of hearing “you’re too young for back pain,”… Continue Reading
An Inside Look: Dealing with Dercum’s Disease
I’m a 37 year old woman of four children. Eight years ago I started to notice my body was in pain a lot. Slowly, year by year, that pain… Continue Reading
Global Genes Blog Editor Weighs in for HuffPo: How Do You Deal With Relatives Who Don’t Understand Your Chronic Illness?
I don’t generally go into the long and sordid story of how me and the majority of my family get on with my chronic illness. But what… Continue Reading
Teen with Ehlers-Danlos Syndrome Defies Disease to Dance “En Pointe”
Sarah Sutton glides across the floor as if dancing is a natural act for her. It is anything but. With extreme care, Sarah steps up on her… Continue Reading
“I Never Knew 24/7 Pain Wasn’t Normal”: Ehlers-Danlos Patient Gets Diagnosis Late in Life
When I was a child, there was no internet. There were no smart phones. Very few people had computers in their homes, and even then, they… Continue Reading
Diagnosed in her mid-thirties, Dagmara has shocked doctors.
Ehlers Danlos Syndrome 6 Spells Multiple Problems for Dagmara
I have Ehlers-Danlos syndrome. One name. A thousand problems. It started when I was born. The doctors said I was a “floppy” baby–which… Continue Reading

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