Tag: Ehlers-Danlos Syndrome

A total of 20 posts are filed under Ehlers-Danlos Syndrome
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My Life with Ehlers-Danlos: Getting Dressed with EDS
By Tiffany Early Marriage comes with many laments. “Why can’t you put the toilet seat down?” “The trash is seriously overflowing!”… Continue Reading
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Life With Medical Zebra Stripes: My EDS Diagnosis
I’ve yet to meet many other Ehler’s-Danlos Syndrome patients who can recall the exact date the syndrome changed their lives forever, but… Continue Reading
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Often in Pain? Double-Jointed? You Could Have Ehlers-Danlos Syndrome
If you don’t know much about Ehlers-Danlos syndrome (EDS), or perhaps you’ve never even heard of it, then you’re not the only one. In… Continue Reading
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“I May Be Rare, But I Am Still Me” Mom with EDS Demands Diagnosis
I have had random back and neck pain since I was a young teen. After more then a decade of hearing “you’re too young for back pain,”… Continue Reading
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An Inside Look: Dealing with Dercum’s Disease
I’m a 37 year old woman of four children. Eight years ago I started to notice my body was in pain a lot. Slowly, year by year, that pain… Continue Reading
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Global Genes Blog Editor Weighs in for HuffPo: How Do You Deal With Relatives Who Don’t Understand Your Chronic Illness?
I don’t generally go into the long and sordid story of how me and the majority of my family get on with my chronic illness. But what… Continue Reading
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Teen with Ehlers-Danlos Syndrome Defies Disease to Dance “En Pointe”
Sarah Sutton glides across the floor as if dancing is a natural act for her. It is anything but. With extreme care, Sarah steps up on her… Continue Reading