6.7.2015 If you don’t know much about Ehlers-Danlos syndrome (EDS), or perhaps you’ve never even heard of it, then you’re not the only one. In… Continue Reading
2.25.2015 I have had random back and neck pain since I was a young teen. After more then a decade of hearing “you’re too young for back pain,”… Continue Reading
5.17.2014 I’m a 37 year old woman of four children. Eight years ago I started to notice my body was in pain a lot. Slowly, year by year, that pain… Continue Reading
Global Genes Blog Editor Weighs in for HuffPo: How Do You Deal With Relatives Who Don’t Understand Your Chronic Illness?
1.2.2014 I don’t generally go into the long and sordid story of how me and the majority of my family get on with my chronic illness. But what… Continue Reading
12.31.2013 Sarah Sutton glides across the floor as if dancing is a natural act for her. It is anything but. With extreme care, Sarah steps up on her… Continue Reading
11.29.2013 When I was a child, there was no internet. There were no smart phones. Very few people had computers in their homes, and even then, they… Continue Reading
5.15.2013 I have Ehlers-Danlos syndrome. One name. A thousand problems. It started when I was born. The doctors said I was a “floppy” baby–which… Continue Reading