Tag: Ehlers-Danlos Syndrome

A total of 21 posts are filed under Ehlers-Danlos Syndrome
My Life with Ehlers-Danlos: Taking EDS on Vacation
In just less than a month, I am going to my absolute favorite place on earth- Disney World. I realize most of the people who agree with me… Continue Reading
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My Life with Ehlers-Danlos: Getting Dressed with EDS
By Tiffany Early Marriage comes with many laments. “Why can’t you put the toilet seat down?” “The trash is seriously overflowing!”… Continue Reading
Life With Medical Zebra Stripes: My EDS Diagnosis
I’ve yet to meet many other Ehler’s-Danlos Syndrome patients who can recall the exact date the syndrome changed their lives forever, but… Continue Reading
Often in Pain? Double-Jointed? You Could Have Ehlers-Danlos Syndrome
If you don’t know much about Ehlers-Danlos syndrome (EDS), or perhaps you’ve never even heard of it, then you’re not the only one. In… Continue Reading
“I May Be Rare, But I Am Still Me” Mom with EDS Demands Diagnosis
I have had random back and neck pain since I was a young teen. After more then a decade of hearing “you’re too young for back pain,”… Continue Reading
An Inside Look: Dealing with Dercum’s Disease
I’m a 37 year old woman of four children. Eight years ago I started to notice my body was in pain a lot. Slowly, year by year, that pain… Continue Reading
Global Genes Blog Editor Weighs in for HuffPo: How Do You Deal With Relatives Who Don’t Understand Your Chronic Illness?
I don’t generally go into the long and sordid story of how me and the majority of my family get on with my chronic illness. But what… Continue Reading