April 3, 2017
Ask Congress to Pass a Real Budget for Medical Research
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February 19, 2017
2017 RARE Patient Impact Grant Awardees
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December 1, 2015
EB Research Partnership Shares Moving Video, Seeks Donation for a Cure
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October 19, 2015
The RARE Patient Impact Grant is Now Open for Applications!
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August 25, 2015
Million Dollar Bike Ride Raising Money for Research Accepting Application for Grants
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August 13, 2013
Aleena Sadownyk, Alberta Girl With Maroteaux-Lamy Syndrome, Awaits Word On Treatment Funding
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April 7, 2013
Boost NIH Funding by $1.5B; Send a Message of Support
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March 14, 2013
Challenges Abound as Researchers Search for Rare Disease Treatments
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