June 13, 2013
Where Do Genetic Diseases Come From, Mom?
February 22, 2012
Meet Mabel – A Child With An Undiagnosed Rare Disease
January 9, 2012
Costs of Caring for Children with Rare Disease – A Survey by Counsyl
June 15, 2011
Free Summer Conference for Young Adults Living with Metobolic/Genetic Conditions
March 11, 2011
Genetic Diseases In Children (GDC) Conference – A Grand Slam!
September 29, 2010
Families look to orphan drug development at University of Minnesota
September 28, 2010
NIH Coalition of Patient Advocacy Groups Convene – Global Genes Represented
September 22, 2010
Charleston|Orwig Goes Blue For Global Genes Project supporting rare disease!
July 2, 2010
Ella – Shine the Light on Aniridia
June 29, 2010
R.A.R.E. Project's, Jonathan Jacoby to present at FDA Hearing on Rare Disease
September 3, 2009
Nominate Your Rock Star of Science!