June 13, 2013
Where Do Genetic Diseases Come From, Mom?
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February 22, 2012
Meet Mabel – A Child With An Undiagnosed Rare Disease
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January 9, 2012
Costs of Caring for Children with Rare Disease – A Survey by Counsyl
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June 15, 2011
Free Summer Conference for Young Adults Living with Metobolic/Genetic Conditions
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March 11, 2011
Genetic Diseases In Children (GDC) Conference – A Grand Slam!
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September 29, 2010
Families look to orphan drug development at University of Minnesota
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September 28, 2010
NIH Coalition of Patient Advocacy Groups Convene – Global Genes Represented
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September 22, 2010
Charleston|Orwig Goes Blue For Global Genes Project supporting rare disease!
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July 2, 2010
Ella – Shine the Light on Aniridia
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June 29, 2010
R.A.R.E. Project's, Jonathan Jacoby to present at FDA Hearing on Rare Disease
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September 3, 2009
Nominate Your Rock Star of Science!
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