April 3, 2012
Psychotherapist Vanessa Lemminger Joins Global Genes As Blogger
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March 12, 2012
USA Today Spotlights Rare Family Fighting For FDA Approval To Treat Dying Twins
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March 8, 2012
Change is Needed at the FDA Says Andrew Von Eschenbach
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March 7, 2012
World Rare Disease Day: A Stunning Show of Support Across The Miles
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February 27, 2012
Zak’s Promise – Battle Against Prader-Willi Syndrome
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February 27, 2012
Meet Riley – Fighting Autoimmune Hemolyic Anemia
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February 26, 2012
Meet Samantha – Battling Cystinuria or Cystine Stones Disease
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February 25, 2012
Growing up with Hunter Syndrome – by Christopher Dutcher
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February 25, 2012
Christian Billingsley – Atypical Hemolytic Uremic Syndrome (aHUS)
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February 25, 2012
Epilepsia Partialis Continua – Our Perfect Life Spins Out of Control
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February 24, 2012
A Family’s Fight Against Carbamoyl Phosphate Synthetase Disease
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February 24, 2012
The Power of Rare Disease Patients – From Passing Laws To Starting BioTechs
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