March 23, 2018
A Task for Tyler- Finding Treatments for SSADH and Hypotonia
February 2, 2016
The Day Our World Stopped: Siblings with Rare Disease Provides Emotional Awakening for…
March 7, 2015
Long Road to a Diagnosis for Cassie With Unique Gene Deletion
April 5, 2014
The Unique Life of Mr.B: Searching for a Diagnosis
April 1, 2014
Jolee’s Journey with Kabuki Syndrome
March 9, 2014
1 in 7,208,605: Jacob’s Experiences with Phelan-Mcdermid Syndrome
March 8, 2014
Brothers Overcoming Obstacles: Pelizaeus-Merzbacher disease
October 28, 2013
Chromosomal Deletion Abnormality in Baby Gregory; Parents Looking for Those Who Have Been&helli...
June 7, 2013
Waves of Impact – Making a Difference One Wave At A Time
May 15, 2013
Ehlers Danlos Syndrome 6 Spells Multiple Problems for Dagmara
November 8, 2012
Unable to Speak and Diagnosed with Phelan-McDermid Syndrome, Sierra is Teaching Others To&helli...
July 31, 2012
From Healthy Baby to Terminal: Building Memories Despite Brook’s Rare and Fatal Tay-Sachs...