March 23, 2018
A Task for Tyler- Finding Treatments for SSADH and Hypotonia
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February 2, 2016
The Day Our World Stopped: Siblings with Rare Disease Provides Emotional Awakening for…
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March 7, 2015
Long Road to a Diagnosis for Cassie With Unique Gene Deletion
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April 5, 2014
The Unique Life of Mr.B: Searching for a Diagnosis
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April 1, 2014
Jolee’s Journey with Kabuki Syndrome
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March 9, 2014
1 in 7,208,605: Jacob’s Experiences with Phelan-Mcdermid Syndrome
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March 8, 2014
Brothers Overcoming Obstacles: Pelizaeus-Merzbacher disease
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October 28, 2013
Chromosomal Deletion Abnormality in Baby Gregory; Parents Looking for Those Who Have Been&helli...
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June 7, 2013
Waves of Impact – Making a Difference One Wave At A Time
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May 15, 2013
Ehlers Danlos Syndrome 6 Spells Multiple Problems for Dagmara
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November 8, 2012
Unable to Speak and Diagnosed with Phelan-McDermid Syndrome, Sierra is Teaching Others To&helli...
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July 31, 2012
From Healthy Baby to Terminal: Building Memories Despite Brook’s Rare and Fatal Tay-Sachs...
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