March 23, 2018
A Task for Tyler- Finding Treatments for SSADH and Hypotonia
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March 2, 2017
Undiagnosed Disease Awareness: Eli's Story
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March 7, 2015
Long Road to a Diagnosis for Cassie With Unique Gene Deletion
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April 5, 2014
The Unique Life of Mr.B: Searching for a Diagnosis
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April 1, 2014
Jolee’s Journey with Kabuki Syndrome
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March 8, 2014
Brothers Overcoming Obstacles: Pelizaeus-Merzbacher disease
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October 28, 2013
Chromosomal Deletion Abnormality in Baby Gregory; Parents Looking for Those Who Have Been There
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May 15, 2013
Ehlers Danlos Syndrome 6 Spells Multiple Problems for Dagmara
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July 31, 2012
From Healthy Baby to Terminal: Building Memories Despite Brook’s Rare and Fatal Tay-Sachs Disease Diagnosis
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