August 30, 2016
“I Still Have Hope,” Mother Describes The Moment She Learned Her Baby Had Joubert Syndrome
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April 6, 2014
Desiree: Much More Than Joubert Syndrome
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March 10, 2013
“It’s Not Just a Disease— It’s Genetics” Siblings Share Rare Disease, Diagnosed through Genome Sequencing
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December 5, 2012
Kaidyn, Who Has Joubert Syndrome, Took Extra Time Learning to Walk
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October 18, 2012
I’ll Take that Award Thank You!
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October 9, 2012
Despite Macka’s Challenges From Joubert Syndrome His Parents are Committed to Giving Him The Best Life Possible
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September 10, 2012
Molor Tooth Sign in Twins’ Brain MRIs Leads To Rare Disease Called Joubert Syndrome
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August 25, 2012
Despite Major Challanges with Joubert Syndrome, My Son is a Gift to be Cherished
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August 2, 2012
Josie is Happy But Left Blind From Joubert Syndrome – A Rare Disease in a Group Called Ciliopathies
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January 30, 2012
Blog Hop for Rare Disease Day – Please Read, Share and Raise Awareness!
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August 25, 2011
‘R.A.R.E.’ BOARD OF DIRECTORS AND ADVISORS ANNOUNCED
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March 9, 2011
World Rare Disease Day for the Joshi Family – A Family Story
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