August 30, 2016
“I Still Have Hope,” Mother Describes The Moment She Learned Her Baby Had…
April 6, 2014
Desiree: Much More Than Joubert Syndrome
March 10, 2013
“It’s Not Just a Disease— It’s Genetics” Siblings Share Rare Disease,...
December 5, 2012
Kaidyn, Who Has Joubert Syndrome, Took Extra Time Learning to Walk
October 18, 2012
I’ll Take that Award Thank You!
September 10, 2012
Molor Tooth Sign in Twins’ Brain MRIs Leads To Rare Disease Called Joubert…
August 2, 2012
Josie is Happy But Left Blind From Joubert Syndrome – A Rare Disease…
January 30, 2012
Blog Hop for Rare Disease Day – Please Read, Share and Raise Awareness!
August 25, 2011
‘R.A.R.E.’ BOARD OF DIRECTORS AND ADVISORS ANNOUNCED
March 9, 2011
World Rare Disease Day for the Joshi Family – A Family Story