March 13, 2012
MarbleRoad: A Storybook Success
February 7, 2012
EveryLife Art Contest – Today is the Day!
September 28, 2010
NIH Coalition of Patient Advocacy Groups Convene – Global Genes Represented
July 11, 2010
Learning to balance privacy and the call of advocacy
June 29, 2010
R.A.R.E. Project's, Jonathan Jacoby to present at FDA Hearing on Rare Disease
May 11, 2010
Letting Go . . . A Little Bit
March 4, 2010
Gabe O'Neill on Kids Making a Difference
February 23, 2010
Parent Essay: It All Happens in the Grocery Store.
February 21, 2010
Blog for Rare! Bloggers Around the World Unite to Support World Rare Disease…
September 3, 2009
Nominate Your Rock Star of Science!