Tag: mitochondrial disease

A total of 21 posts are filed under mitochondrial disease
MITO WALK AND ROLL LOGO 2016 (revised)
The Mito 5k Run a Success in San Diego, CA
It’s a happy four years running for the Mito 5k Pajama Run, a San Diego based marathon, which raised over $75,000 this year during their… Continue Reading
Son’s Sudden and Mysterious Weight-Loss Sparks Concern
Jourdin Rust, 8, of Emporia began the 2014 school year as any normal child would, filling his free time with sports and enjoying time with… Continue Reading
Colin Farrell Meets and Speaks with Families of Children with Mitochondrial Disease
The Hollywood star, who was in Dublin last week to promote his new film The Lobster, took time out to visit children from the Katie Rose… Continue Reading
Callum McGilligan of Longbenton with sister Faye McGilligan
“You Would Have Thought One Rare Disease on One Boy Was Enough”
A schoolboy labelled a “ticking timebomb” after suffering a rare illness has now been diagnosed with life-limiting mitochondrial… Continue Reading
They Told Her to Let Her Daughter Go: ” I Was Not Ready to Give Up”
Story by Amye Marquis Riley is a true Miracle. Born 12 days early, with her twin brother, Carter, we thought our lives were perfect. Then,… Continue Reading
Kimonis lab photo 1
New Interview: Lab of Dr. Kimonis from UC Irvine–Promises Rare Research
In celebration of World Rare Disease Day, Global Genes would like to highlight the work of Dr. Virginia E. Kimonis of UC Irvine. Kimonis… Continue Reading
The Journey of Super Ryder with Multiple Rare Diseases
Our little warrior Ryder came into this world fighting from the beginning arriving early at 35 weeks. After respiratory distress, jaundice,… Continue Reading