Tag: mitochondrial disease

A total of 22 posts are filed under mitochondrial disease
High School Junior Raising Awareness for Mitochondrial Disease
Looking at the breathing machines and the tubes inserted in the bodies of her cousins brings Kayla West to tears. She watched helplessly as… Continue Reading
The Mito 5k Run a Success in San Diego, CA
It’s a happy four years running for the Mito 5k Pajama Run, a San Diego based marathon, which raised over $75,000 this year during their… Continue Reading
Son’s Sudden and Mysterious Weight-Loss Sparks Concern
Jourdin Rust, 8, of Emporia began the 2014 school year as any normal child would, filling his free time with sports and enjoying time with… Continue Reading
Colin Farrell Meets and Speaks with Families of Children with Mitochondrial Disease
The Hollywood star, who was in Dublin last week to promote his new film The Lobster, took time out to visit children from the Katie Rose… Continue Reading
“You Would Have Thought One Rare Disease on One Boy Was Enough”
A schoolboy labelled a “ticking timebomb” after suffering a rare illness has now been diagnosed with life-limiting mitochondrial… Continue Reading
They Told Her to Let Her Daughter Go: ” I Was Not Ready to Give Up”
Story by Amye Marquis Riley is a true Miracle. Born 12 days early, with her twin brother, Carter, we thought our lives were perfect. Then,… Continue Reading
New Interview: Lab of Dr. Kimonis from UC Irvine–Promises Rare Research
In celebration of World Rare Disease Day, Global Genes would like to highlight the work of Dr. Virginia E. Kimonis of UC Irvine. Kimonis… Continue Reading