Tag: National Institutes of Health

A total of 27 posts are filed under National Institutes of Health
RDLA’s Rare Disease Week on Capitol Hill Itinerary
Register TODAY to join fellow rare disease patients, caregivers and other advocates from across the country at Rare Disease Week on Capitol… Continue Reading
Vtesse Secures Support for Product Development and Ongoing Clinical
Vtesse, Inc., a company committed to developing drugs that will benefit patients with extremely rare, life-threatening diseases, announced… Continue Reading
RARECast: Discovering the Creative Use of Outrage
When a doctor delivered a devastating diagnosis to Pat Furlong for her two sons with Duchenne Muscular Dystrophy, she refused to sit by and… Continue Reading
World Rare Disease Day at the National Institute of Health (Video)
The National Institutes of Health (NIH) will celebrate the sixth annual Rare Disease Day with a two-day-long celebration and recognition of… Continue Reading
A Genomics Argument About Why the NIH is Good for Business
A quote from Elaine Mardis, the Washington University in St.Louis DNA sequencing expert, about how cuts to NIH funding are hurting genomics… Continue Reading
Third Annual Healthcare Summit Discusses Ways to Spread Awareness and Bolster Policy Changes
On November 14-17, Women in Government held its Third Annual Healthcare Summit in Washington, D.C. This three-day event covered a wide range… Continue Reading
The Forever Fix: Gene Therapy and the Boy Who Saved It
“On a bright September day in 2008, 8-year-old Corey Haas went to the Philadelphia zoo with his parents, and screamed. Four days earlier… Continue Reading
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