Tag: National Institutes of Health

A total of 25 posts are filed under National Institutes of Health
RARECast: Discovering the Creative Use of Outrage
When a doctor delivered a devastating diagnosis to Pat Furlong for her two sons with Duchenne Muscular Dystrophy, she refused to sit by and… Continue Reading
World Rare Disease Day at the National Institute of Health (Video)
The National Institutes of Health (NIH) will celebrate the sixth annual Rare Disease Day with a two-day-long celebration and recognition of… Continue Reading
A Genomics Argument About Why the NIH is Good for Business
A quote from Elaine Mardis, the Washington University in St.Louis DNA sequencing expert, about how cuts to NIH funding are hurting genomics… Continue Reading
Nicole Boice, of Global Genes | R.A.R.E. Project, stands beside Dr. David Eckstein, of the National Institutes of Health.
Third Annual Healthcare Summit Discusses Ways to Spread Awareness and Bolster Policy Changes
On November 14-17, Women in Government held its Third Annual Healthcare Summit in Washington, D.C. This three-day event covered a wide range… Continue Reading
Eileen O'Brien, Siren Interactive's Director of Search & Innovation.  Eileen has more than 16 years of digital healthcare marketing experience and is considered an opinion leader on social media
The Forever Fix: Gene Therapy and the Boy Who Saved It
“On a bright September day in 2008, 8-year-old Corey Haas went to the Philadelphia zoo with his parents, and screamed. Four days earlier… Continue Reading
The University of Cincinnati Department of Pediatrics, is one of the nation’s leading clinical, research and teaching institutions.
Cincinnati Children’s Announces Major Advancement In Treatment of Duchenne Muscular Dystrophy
Oct. 16, 2012 Contact: Jim Feuer 513-636-4656 Cincinnati Children’s Announces Major Advancement in Treatment of Duchenne Muscular… Continue Reading
RDLA is hosting an Advocates Luncheon & Conference Call on September 12, 2012.  RSVP is required for attendance.
RARE Disease Lobby Day – February 28 – Washington, DC
RDLA is partnering with the EveryLife Foundation for Rare Diseases, RARE Project, Sarcoma Foundation of America, Darlington House and… Continue Reading