May 5, 2017
RARECast: One Patient’s Difficult Road to a Rare Diagnosis
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November 15, 2012
Acute Intermittent Porphyria: Joy Lives With Avoidance and Caution
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August 9, 2012
Sudden Sun Blisters on Hands and Arms Leads To Diagnosis of Congenital Erythropoietic Porphyria (CEP or Gunther disease)
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August 6, 2012
Educating Doctors and Public on Rare Disease Called Porphyria is Mission of Patient Advocate Sarah Lee
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