Tag: Prader-Willi Syndrome

A total of 19 posts are filed under Prader-Willi Syndrome
Three Children. Three Distinct Diagnoses. One Common Dilemma.
Thanks to The Times Telegraph for this piece. Three children. Three distinct diagnoses. One common dilemma. Allie Barone, 11, of Clinton,… Continue Reading
Can Oxytocin Help Children with Rare Eating Disorder?
by James Radke, PhD Prader-Willi syndrome (PWS) is a genetic disease best characterized by individuals developing an insatiable appetite,… Continue Reading
Mayim Bialik Encourages Awareness of Prader-Willli With Online PSA
As posted on her website, Mayim Bialik shared her thoughts on the disease and her hopes for the Angel Drive to spur more support and… Continue Reading
Young Prader-Willi Patients Becomes Fire Chief For the Day
A community came together to give one little girl a big Halloween surprise. Gracie Duplisea, age 7, has a rare disease called… Continue Reading
Prader-Willi Patients Have New Opportunity to Enter Clinical Trial
Late for lunch, not enough for dinner–we may think we’re familiar with the sensation of hunger, but for patients with Prader-Willi… Continue Reading
“He Could Eat Himself to Death” The Reality of Prader-Willi Syndrome
A three-year-old boy with a rare genetic disorder has to be monitored constantly to stop him eating himself to death. Geezer Buxton is one… Continue Reading
New Interview: Lab of Dr. Kimonis from UC Irvine–Promises Rare Research
In celebration of World Rare Disease Day, Global Genes would like to highlight the work of Dr. Virginia E. Kimonis of UC Irvine. Kimonis… Continue Reading