October 5, 2012
Genzyme Announces Winners of 2012 Patient Advocacy Leadership Awards
Read More
September 12, 2012
Jewelry Designer Lynda Carson of Fresh Baked Designs Donates Bracelets To Families Affected By Rare Diseases
Read More
September 12, 2012
Juvenile Myositis and Rett Syndrome Foundations Team Up To Ask For Votes To Win Top Chase Community Giving Grant
Read More
August 6, 2012
Ehlers-Danlos Syndrome Misdiagnosed In Holly As “Growing Pains” From Playing Too Many Sports
Read More
August 1, 2012
Whole Exome Sequencing Identifies Mystery Gene in 3 year old Gavin Stevens
Read More
July 20, 2012
Stem Cells Derived From Umbilical Cord Banking Have Great Potential to Treat Rare Diseases
Read More
July 10, 2012
Historic Legislation Signed by President Obama To Help Patients with Rare Diseases
Read More
July 1, 2012
Advocate For Your Rare Disease or Foundation – Submit Your Story To Global Genes
Read More
June 24, 2012
Bracelets Provide Becca Hope That She Can Fight Her Multiple Rare Diseases
Read More
February 29, 2012
Global Genes Project Unites Advocates on World Rare Disease Day 2012
Read More
February 25, 2012
Christian Billingsley – Atypical Hemolytic Uremic Syndrome (aHUS)
Read More
Load More
X