March 7, 2018
5 Things I’ve Learned About Living With a Rare Disease
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September 9, 2012
Sean Suffers From M-CMTC and Hydrocephalus Yet Brings an Infectious Laugh To Everyone He Knows
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May 16, 2012
Pfizer Announces FDA Approval of ELELYSO™ for Type 1 Gaucher Disease and Personal Support Program For Patients
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January 25, 2012
Charities Unite Worldwide to Fund Research into Reversibility of Brain Damage Caused By Sanfilippo Syndrome
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January 10, 2012
Charity Tuesday: Courage to Make a Difference
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December 21, 2011
Submit your art and win an iPod Touch!
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December 13, 2011
Brad Paisley Lends Voice to New Song “Hard Life” to benefit A-T Children’s Project
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October 17, 2011
50/50 and Neurofibrosarcoma
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October 17, 2011
New York Times Opinion – Notes from a Dragon Mom!
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August 10, 2011
Rare Disease Registries 101
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August 1, 2011
NeuroDetour: A Conversation with Melanie Miller
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July 4, 2011
The Flammable Heart Exhibition
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