Blogs

Rare Revolution Magazine Features Cystic Fibrosis Patient, Emily Kramer-Golinkoff

May 15, 2017

Every now and then your meet someone who is an interminable force of nature, someone so passionate and inspirational in all they do they make you strive to be a better person. In October, last year Rebecca Stewart had the absolute pleasure of meeting one such young woman and her wonderful Mum Liza. It is therefore completely fitting that our Corporate Edition, Rare Inspiration is Emily Kramer-Golinkoff.

Emily was just six weeks old when her parents, Michael and Liza, received the devastating news that Emily had been born with cystic fibrosis (CF), a progressive and fatal genetic disease that primarily affects the lungs and digestive system. After the fear, sadness and complete shock of the diagnosis, Emily’s parents were determined that her life would be joyous and fulfilling, whilst ensuring she received optimal medical care. Their unwavering determination has paid off and now aged thirty-two, Emily is smart, passionate, and has inherited her parents’ dogged determination.

Continue reading Emily’s full story in Rare Revolution Magazine, on page 3.

 

Rare Revolution Magazine is a FREE subscription digital magazine giving a voice to the rare disease community. Subscribe at www.rarerevolutionmagazine.com

All rare patients, families and charities are invited to join our online Revolutionaries Community, which is a virtual meeting to bring support and action for rare disease. 

https://www.facebook.com/groups/RareRevolutionMagazineRevolutionariesCommunity/

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