Tag: research

A total of 31 posts are filed under research
FDA Awards 18 Grants to Stimulate Product Development for Rare Diseases
The U.S. Food and Drug Administration today announced it has awarded 18 new research grants totaling more than $19 million to boost the… Continue Reading
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Novartis: Why Research into Rare Diseases Matters
Addressing significant unmet medical need is a cornerstone of Novartis strategy and why we spend so much time and energy researching rare… Continue Reading
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Global Genes: White Paper, The Must-Have Collaborations for Successful Drug Development
The team at Global Genes is happy to present a new White Paper that was developed to expand the dialogue on this important topic, that first… Continue Reading
Image credit: Laura Riedel
Washington Post: How to Get Researchers to Notice an Ultra-Rare Disease
(Published originally in the Washington Post) It wasn’t until she read her husband’s autopsy report that Kathy Brewer learned his… Continue Reading
Researchers Study Ebola Link to Gene in Rare Disease
In the search for answers about Ebola, researchers are starting to look at an unexpected group of people: parents with children who have the… Continue Reading
3d Chromosome
New Study on CAID Syndrome Links Heart and Gut
Physicians and researchers at CHU Sainte-Justine, Université de Montréal, CHU de Québec, Université Laval, and Hubrecht Institute have… Continue Reading
Experts Ask India to Lead R&D in Rare Disease Drugs
Drug industry experts have called upon the Indian government to frame a policy on rare diseases to provide cure for 10 crore people… Continue Reading
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