Tag: research

A total of 32 posts are filed under research
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Pitt Hopkins Awareness Day Coming September 18th
Organization: Pitt Hopkins Research Foundation Submitted by: Jessica Fletcher Sunday, September 18th marks our 4th annual International Pitt… Continue Reading
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FDA Awards 18 Grants to Stimulate Product Development for Rare Diseases
The U.S. Food and Drug Administration today announced it has awarded 18 new research grants totaling more than $19 million to boost the… Continue Reading
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Novartis: Why Research into Rare Diseases Matters
Addressing significant unmet medical need is a cornerstone of Novartis strategy and why we spend so much time and energy researching rare… Continue Reading
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Global Genes: White Paper, The Must-Have Collaborations for Successful Drug Development
The team at Global Genes is happy to present a new White Paper that was developed to expand the dialogue on this important topic, that first… Continue Reading
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Washington Post: How to Get Researchers to Notice an Ultra-Rare Disease
(Published originally in the Washington Post) It wasn’t until she read her husband’s autopsy report that Kathy Brewer learned his… Continue Reading
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Researchers Study Ebola Link to Gene in Rare Disease
In the search for answers about Ebola, researchers are starting to look at an unexpected group of people: parents with children who have the… Continue Reading
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New Study on CAID Syndrome Links Heart and Gut
Physicians and researchers at CHU Sainte-Justine, Université de Montréal, CHU de Québec, Université Laval, and Hubrecht Institute have… Continue Reading
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