Tag: SMA

A total of 9 posts are filed under SMA
Santa Barbara Marathon to be Run in Honor of Gwendolyn Strong
She beat the odds for so long and inspired so many around the world. Now hundreds of people will run in the Santa Barbara Veterans Day Half… Continue Reading
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Annual Sacramento Walk & Roll for Spinal Muscular Atrophy, Oct 17th
When 4-year-old Malena and her family discovered her diagnosis of Spinal Muscular Atrophy (SMA) they decided to gather their local… Continue Reading
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September is SMA Awareness Month! CureSMA Gives Tips On Raising Awareness
Each September is SMA Awareness Month, a time when families in the Cure SMA community undertake special efforts to amplify their year-round… Continue Reading
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Isis Pharmaceuticals Reports Data on Phase 2 Study in Infants with Spinal Muscular Atrophy
Isis Pharmaceuticals, Inc. (NASDAQ: ISIS) today provided an update on its ongoing open-label Phase 2 clinical study of ISIS-SMNRx in infants… Continue Reading
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The Smith Family Raises Awareness for “Parents of Medically Challenged Kids”
My name is Chad Smith, also known as “Chad the Dad”. My wife, Becky, and I are the proud parents of two wonderful children, Aleah who is… Continue Reading
August is Spinal Muscular Atrophy Awareness Month
Spinal muscular atrophy (SMA) is the leading genetic cause of death in babies under the age of two.  It affects families of all ethnic… Continue Reading
Carrier Screening in the Era of Genomic Medicine
“It’s not so bad to find out that you are a carrier…[but] finding out that you are a carrier of SMA [spinal muscular atrophy] from… Continue Reading