Tag: SMA

A total of 12 posts are filed under SMA
Hope For 16-Year-Old California Boy Fighting Rare Genetic Disease
 By Justine Waldman, SOURCE It is a story about courage, tenacity, and perseverance. It is about parents who are keeping up the fight to… Continue Reading
Four-Year-Old with Amyotrophic Lateral Sclerosis Finds Hope With New Drug
A new drug is offering hope for the family of a little girl whose genetic defect causes mobility issues similar to that of polio and… Continue Reading
Boy Battling Spinal Muscular Atrophy Takes First Steps
BY MARNI HUGHES (source)   From the moment Isaiah Kobernik was born, the odds were stacked against him.   Isaiah was born with a rare… Continue Reading
Santa Barbara Marathon to be Run in Honor of Gwendolyn Strong
She beat the odds for so long and inspired so many around the world. Now hundreds of people will run in the Santa Barbara Veterans Day Half… Continue Reading
Annual Sacramento Walk & Roll for Spinal Muscular Atrophy, Oct 17th
When 4-year-old Malena and her family discovered her diagnosis of Spinal Muscular Atrophy (SMA) they decided to gather their local… Continue Reading
September is SMA Awareness Month! CureSMA Gives Tips On Raising Awareness
Each September is SMA Awareness Month, a time when families in the Cure SMA community undertake special efforts to amplify their year-round… Continue Reading
Isis Pharmaceuticals Reports Data on Phase 2 Study in Infants with Spinal Muscular Atrophy
Isis Pharmaceuticals, Inc. (NASDAQ: ISIS) today provided an update on its ongoing open-label Phase 2 clinical study of ISIS-SMNRx in infants… Continue Reading