May 20, 2017
The Balancing Act Covers the Orphan Drug Conference USA 2017
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May 8, 2016
Celebrating 20 Years of Help and Support at the Fabry Support & Information Group
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October 2, 2015
RDR: Understanding Fibromuscular Dysplasia
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September 2, 2015
#15ForRare Contest: The Winners!
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August 31, 2015
Meet the Team at the Foundation for Ichthyosis and Related Skin Types
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July 7, 2015
Shire Launches Spotlight on Gaucher Film Contest and Calls for Video Entries Sharing Experiences of Living with Gaucher Disease
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July 7, 2015
Spotlight on Gaucher Film Contest–Share Your Videos!
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May 22, 2015
FIRST Releases New Ichthyosis Awareness Video
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April 15, 2015
“Join The Hope Movement” Video Wins 2015 Bronze Telly Award For Not-For-Profit
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March 13, 2015
Blind Child Expects to See His “Adorable” Face Soon
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March 12, 2015
New Video: Menkes Disease : Finding Help & Hope
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December 19, 2014
Catching Up with the Rare Daily: Genetic Disorders UK, Pediatric Palliative Care & Congres
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