Tag: World Rare Disease Day

A total of 146 posts are filed under World Rare Disease Day
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Mother and Daughter Diagnosis Spurs Awareness Efforts
My daughter Meghan was diagnosed with Cowden’s Syndrome, (a mutation on the PTEN (Tumor Suppressor gene) in the fall of 2011. Her medical… Continue Reading
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RARE Recap: Even More Coverage, World Rare Disease Day Events
Millions participated in this year’s World Rare Disease Day–so many, in fact, that we had to do a THIRD compilation post to show all… Continue Reading
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RARE Recap: Even More Photos of World Rare Disease Day!
Millions participated in this year’s World Rare Disease Day–so many, in fact, that we had to do a second compilation post to show all of… Continue Reading
MD House Resolution
Rare Recap: Here’s How Some of You Spent World Rare Disease Day!
Millions participated in this year’s World Rare Disease Day! At Global Genes, we love to see the rare community come together for a great… Continue Reading
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What Did YOU Do for World Rare Disease Day? Tell Us Here!
This year’s 2015 World Rare Disease Day was a huge success! Celebrated by patients, their friends and families, co-workers, caregivers,… Continue Reading
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Before the Diagnosis: Celebrating World Rare Disease Day with Global Genes
Global Genes asks that you Wear That You Care this year on February 28th on World Rare Disease Day 2015. Learn more about how you can get… Continue Reading
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Wendy White: Precision Medicine and the Future of Rare Disease
There’s been a great deal of excitement around President Obama’s announcement that he would devote $215 million of his 2016 budget to a… Continue Reading
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