3.9.2018 This year’s World Rare Disease Day marked the first time an event has been organized in Ghana to support rare diseases. The event, dubbed… Continue Reading
3.7.2018 It has been over 2 years now since my 4 year old son was diagnosed with a rare disease. The first year was spent getting our bearings and… Continue Reading
3.1.2017 Congratulations to our friends at Abeona Therapeutics Inc. (ABEO), a leading clinical-stage biopharmaceutical company focused on developing… Continue Reading
2.23.2017 Just as the pink ribbon symbolizes breast cancer awareness, the Blue Denim Genes Ribbon® is a perfect universal sign for rare and genetic… Continue Reading
3.16.2016 Perla Portillo is a mom on a mission. Along with her husband, Jorge, the couple hosted an event in honor of their oldest daughter, Alanis.… Continue Reading
2.29.2016 This World Rare Disease Day, Global Genes, a leading rare disease patient advocacy organization, is proud to debut the new film, Finding… Continue Reading
7.10.2015 On February 28, World Rare Disease Day, Noah Coughlan set out on a 3,100 mile run across America from New York City to San Diego’s Ocean… Continue Reading
