3.16.2016
Perla Portillo is a mom on a mission. Along with her husband, Jorge, the couple hosted an event in honor of their oldest daughter, Alanis.… Continue Reading
2.29.2016
This World Rare Disease Day, Global Genes, a leading rare disease patient advocacy organization, is proud to debut the new film, Finding… Continue Reading
7.10.2015
On February 28, World Rare Disease Day, Noah Coughlan set out on a 3,100 mile run across America from New York City to San Diego’s Ocean… Continue Reading
3.23.2015
My daughter Meghan was diagnosed with Cowden’s Syndrome, (a mutation on the PTEN (Tumor Suppressor gene) in the fall of 2011. Her medical… Continue Reading
3.12.2015
Millions participated in this year’s World Rare Disease Day–so many, in fact, that we had to do a THIRD compilation post to show all… Continue Reading
3.6.2015
Millions participated in this year’s World Rare Disease Day–so many, in fact, that we had to do a second compilation post to show all of… Continue Reading
3.5.2015
Millions participated in this year’s World Rare Disease Day! At Global Genes, we love to see the rare community come together for a great… Continue Reading
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