Webinar
March 14, 2019 By Global Genes
RARE Webinar Poster Presentation 1
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March 4, 2019 By Global Genes
Strength in Numbers: Because having a rare disease isn’t rare
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February 5, 2019 By Global Genes
Setting Up Your RARE Portal
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Toolkit
January 31, 2019 By Global
Rare Insight: Building a Stronger Financial Future
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Toolkit
January 31, 2019 By Global
How to Promote Your Rare Disease Story through Social Media
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Toolkit
January 31, 2019 By Global
Building a Care Notebook
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Toolkit
January 31, 2019 By Global
Navigating Emotions: A Guide for Teenagers with Rare Diseases
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Toolkit
January 31, 2019 By Global
Informed Consent: Important for Treatment Decisions and Advancing Research
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Toolkit
January 31, 2019 By Global
Keys to Help Rare Disease Patients Ensure a Successful Surgery
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Toolkit
January 31, 2019 By Global
Rare Disease Registries: Advancing Disease Understanding, Treatments, and Cures
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Toolkit
January 30, 2019 By Global
Access To Unapproved Medicine: Is This An Option For Me? (Canada)
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Toolkit
January 30, 2019 By Global
Using Storytelling To Raise Awareness For Your Rare Disease
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