Diffuse cutaneous systemic sclerosis
Synonyms: Diffuse cutaneous systemic scleroderma | Progressive cutaneous systemic scleroderma | Progressive cutaneous systemic sclerosis
Diffuse cutaneous systemic sclerosis (dcSSc) is a subtype of Systemic Sclerosis (SSc; see this term) characterized by truncal and acral skin fibrosis with an early and significant incidence of diffuse involvement (interstitial lung disease oliguric renal failure diffuse gastrointestinal disease and myocardial involvement).
Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview.
Reference: Access aggregated data from Orphanet at Orphadata.
Orphadata: Free access data from Orphanet. © INSERM 1999. Available on http://www.orphadata.org. Data version May 2024
Newly diagnosed with
Diffuse cutaneous systemic sclerosis?
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Advocacy Organizations
Ann Steffens Scleroderma Research Foundation, Inc.
- Support and promote research toward treatment and cure of scleroderma, Degos disease, and other related disorders - Promote awareness and understanding of these disorders, especially among health-care professionals - Encourage collaborative efforts, nationally and internationally, aimed at realizing these goals
Children’s Cardiomyopathy Foundation
CCF's mission is to accelerate the search for causes and cures for pediatric cardiomyopathy through increased research, education, awareness, advocacy, and support to affected children and their families.
Heart of a Giant Foundation
The mission of the HGF is to achieve better health outcomes for heart diseases and related chronic health conditions in our communities and enhance the quality of life through health education, care support, and connection to community resources.
Help Hope Live
Help Hope Live assists individuals living with catastrophic injuries and illnesses to fundraise toward their medical expenses and related costs.
My Faulty Gene
My Faulty Gene is a nonprofit organization which provides information and assistance to any individual whose family medical history suggests genetic testing might be helpful in identifying an increased risk of disease due to a genetic mutation. We believe that everyone in need of genetic testing should have access to it.
National Scleroderma Foundation
Our mission is to advance medical research, promote disease awareness, and provide support and education to people with scleroderma, their families and support network.
Project Clio
To improve our understanding of rare and understudied autoimmune conditions
Project Scleroderma
To raise awareness for Scleroderma by way of documentary films/videos, educating and inspiring support of research.
Scleroderma Canada
Vision: Improved quality of life for scleroderma patients and their families through education, support, research and increased public awareness. Mission: The Scleroderma Society of Ontario is committed to promoting increased public awareness, advancing patient wellness and supporting research in scleroderma.
Scleroderma Foundation of California
We want all scleroderma patients to receive an accurate and timely diagnosis, and access to care and support for those who require it, until we find a cure. Our mission is to EMPOWER the scleroderma community to live BETTER lives through programs dedicated to SUPPORT, EDUCATION, and RESEARCH
Scleroderma Research Foundation
The mission of the Scleroderma Research Foundation (SRF) is to fund and facilitate the most promising, highest quality research aimed at improved therapies and, ultimately, a cure for scleroderma.
UNITED FOR SCLERODERMA Foundation
To assist the newly diagnosed Scleroderma patients
Clinical Trials
For a list of clinical trials in this disease area, please click here.